I have to thank the Dystonia Society for the great video from Dr Marie-Helene. As a Dystonia sufferer myself I know through experience that it is a condition that can be painful and, at times, frustrating. I have a specialist and have for many years. I take medication in moderation and have botulinum injections to help. It took years before I did my own research and realised what had been holding me back. For those years I thought I was going mad. I could not control certain muscles and the pain was hard to take. I know there will be people right now who will be searching for reasons and cures. Well if you come across this blog please use these links and do not rely on you GP. Get transferred to a specialist and remember that you are the artist of your own actions.

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